PENGALAMAN KELUARGA DALAM MERAWAT ANGGOTA KELUARGA (ORANG) DENGAN HIV/AIDS
Abstract
People infected with HIV/AIDS (people living with HIV/AIDS) continue to be a health problem in the world. At the end of 2021, there were 38.4 million people living with HIV. Data in 2023 contained 71 patients with HIV/AIDS. The phenomenon found is that as the clinical stage increases, people living with HIV/AIDS experience a decline in their health, so they need family assistance for ARV care and treatment throughout their lives. This is a burden experienced by the family in the long term, which will affect the family's quality of life. The research aimed to determine family experiences in caring for family members of people living with HIV/AIDS. The design of this research is qualitative with a phenomenological approach. Informants are families who care for family members who have HIV/AIDS. Data were collected using in-depth interviews with 10 participants in accordance with the inclusion criteria and using data saturation supported by observation results and document searches. The research provides four main themes: the physical crisis and family burden of people living with HIV/AIDS, prevention and treatment, transmission and dilemmas in the family, coping and support. Nurses can carry out a family-based approach, providing education and involving families in making health-related decisions for people living with HIV/AIDS. Forming support groups for families and empowering communities by providing health education and anti-stigma advocacy to help overcome the problem of stigma and discrimination in society
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References
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29. French K. Kesehatan Seksual. Jakarta: Bumi Medika; 2020.
30. Herlinda F, Diniarti F, Darmawansyah. Faktor-Faktor Yang Berhubungan Dengan Kejadian HIV/AIDS Di Puskesmas Penurunan Kota Bengkulu Tahun 2022. Jurnal Vokasi Kesehatan (JUVOKES). 2023;2(1):13-22.
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33. Soliha, Masfi A. Hubungan Antara Mekanisme Koping Keluarga Dengan Penerimaan Diri (Self Acceptance) Keluarga Pasien HIV/AIDS di Wilayah Kerja Puskesmas Bangkalan. Jurnal Ilmiah Ilmu Keperawatan. 2020;11(2):1-10.
34. Cluver LD, Sherr L, Toska E, et al. From surviving to thriving: integrating mental health care into HIV, community, and family services for adolescents living with HIV. Lancet Child Adolesc Health. 2022;6(8):582-592. doi:10.1016/S2352-4642(22)00101-8
2. Farlina M, Mansur A, Sari M. Dukungan Keluarga Yang Dibutuhkan Orang Dengan HIV/AIDS (ODHA). Eureka Media Aksara; 2023.
3. WHO. HIV/AIDS. https://www.who.int/news-room/fact-sheets/detail/hiv-aids.
4. Dinkes Provinsi Kepulauan Riau. Profil Kesehatan Provinsi Kepulauan Riau Tahun 2021. Dinas Kesehatan Provinsi Kepulauan Riau; 2021.
5. Marisa DE. Support Of Family To People Live With HIV/AIDS (Plwha) In The Working Area Of Kaliwedi Health Center In District Of Cirebon. Jurnal Kesehatan Mahardika. 2018;5(1):57-63. doi:10.54867/jkm.v5i1.37
6. Sasmita A, Waluya N, Dwidasmara S, Hikmah E. Model Pemberdayaan Keluarga Berdasarkan MPK Sila Tilu Dalam Meningkatkan Kepatuhan Minum Obat Dan Dukungan Keluarga Terhadap ODHA. Jurnal riset Kesehatan Poltekkes Depkes Bandung. 2022;14(2):292-301. doi:10.34011/juriskesbdg.v14i2.2073
7. Kemenkes RI. Panduan Perawatan Orang Dengan HIV AIDS Untuk Kelurga Dan Masyarakat. Kemenkes RI; 2017.
8. Mukarromah S, Azinar M. Penghambat Kepatuhan Terapi Antiretroviral pada Orang dengan HIV/AIDS (Studi Kasus pada Odha LossTo Follow Up Therapy). Indonesian Journal of Public Health and Nutrition. 2021;1(3):396-406.
9. Van Deventer C, Wright A. The psychosocial impact of caregiving on the family caregivers of chronically ill AIDS and/or HIV patients in home-based care: A qualitative study in Zimbabwe. South Afr J HIV Med. 2017;18(1). doi:10.4102/sajhivmed.v18i1.718
10. Safarzadeh Jahromy H, Hemayatkhah M, Rezaei Dehnavi S, Rahmanian V. Experiences of People Living with HIV (PLHIV) in Jahrom, Southern Iran: A Phenomenological Study. Int J High Risk Behav Addict. 2021;10(2). doi:10.5812/ijhrba.108414
11. Ernawati E, Marwiyah N, Rahmawati D. Studi Fenomenologi Pengalaman Merawat Anak Dengan HIV. Coping: Community of Publishing in Nursing. 2022;10(2):193. doi:10.24843/coping.2022.v10.i02.p11
12. Fauk NK, Mwanri L, Hawke K, Mohammadi L, Ward PR. Psychological and Social Impact of HIV on Women Living with HIV and Their Families in Low- and Middle-Income Asian Countries: A Systematic Search and Critical Review. Int J Environ Res Public Health. 2022;19(11):6668. doi:10.3390/ijerph19116668
13. Martha E. Metode Penelitian Kualitatif Untuk Bidang Kesehatan. Jakarta: Rajawali Press; 2020.
14. Matahari R, Utami FP. Kesehatan Reproduksi Remaja Dan Infeksi Menular Seksual. Yogyakarta: Pustaka Ilmu; 2018.
15. Ramni L, Widanti S A, Sulistiyanto H. The Role Of Doctors And Nurses In Hiv/Aids Handling Efforts Of The Gays. SOEPRA. 2018;4(1):171. doi:10.24167/shk.v4i1.1484
16. Kasande M, Natwijuka A, Katushabe Snr E, Tweheyo Otwine Snr A. Experiences of Caring for Adolescents Living with HIV (ALHIV): A Qualitative Interview with Caregivers. HIV/AIDS - Research and Palliative Care. 2022;Volume 14:577-589. doi:10.2147/HIV.S388715
17. Azhar AS, Effendi I. Hubungan Beban Perawatan Dengan Kualitas Hidup Caregiver Orang Dengan HIV-AIDS (ODHA). Jurnal Penelitian Dan Karya Ilmiah Lembaga Penelitian Universitas Trisakti . 2023;8(2):231-240. doi:10.25105/pdk.v8i2.15226
18. Inamdar S, Kosambiya J, Modi A. Caregiver's burden of children living with HIV on antiretroviral therapy at an urban setup. Indian Journal of Community Medicine. 2021;46(4):744. doi:10.4103/ijcm.IJCM_49_21
19. Safarzadeh Jahromy H, Hemayatkhah M, Rezaei Dehnavi S, Rahmanian V. Experiences of People Living with HIV (PLHIV) in Jahrom, Southern Iran: A Phenomenological Study. Int J High Risk Behav Addict. 2021;10(2). doi:10.5812/ijhrba.108414
20. Sahoo S, Khanna P, Verma R, Mahapatra S, Parija P, Panda U. Social Stigma and its Determinants Among People Living with HIV/AIDS: A cross sectional study at ART center in North India. J Family Med Prim Care. 2020;9(11):5646-5651.
21. Azhar AS, Effendi I. Hubungan Beban Perawatan Dengan Kualitas Hidup Caregiver Orang Dengan HIV-AIDS (ODHA). Jurnal Penelitian Dan Karya Ilmiah Lembaga Penelitian Universitas Trisakti. 2023;8(2):231-240. doi:10.25105/pdk.v8i2.15226
22. Ernawati E, Marwiyah N, Rahmawati D. Studi Fenomenologi Pengalaman Merawat Anak Dengan HIV. Coping: Community of Publishing in Nursing. 2022;10(2):193. doi:10.24843/coping.2022.v10.i02.p11
23. Li L, Sun S, Wu Z, Wu S, Lin C, Yan Z. Disclosure of HIV status is a family matter: Field notes from China. Journal of Family Psychology. 2007;21(2):307-314. doi:10.1037/0893-3200.21.2.307
24. Nursalam, Kurniawati. Asuhan Keperawatan Pada Pasien Terinfeksi HIV/AIDS. Salemba Medika; 2018.
25. Malik M, Girotra S, Roy D, Basu S. Knowledge of HIV/AIDS and its determinants in India. Popul Med. 2023;1(3):1-12.
26. Akilontan RA. Analysis Of Family Role In HIV/AIDS Prevention Among The Ilajes' of South Western Nigeria. . Sapientia Global Journal of Arts, Humanities and Development Studies. 2022;5(2):343-354.
27. Adnan D. Hubungan Dukungan Keluarga Dan Tingkat Pendidikan Pasien Terhadap Kepatuhan Minum Obat Antiretroviral Pasien HIV AIDS di Poli RSUD DR. Drajat Prawiranegara Serang Banten. Malahayati Health Student Journal. 2021;1(2):82-91.
28. Firza Kumala T, Lindayani L, Hasan A, et al. Family Support for HIV Patients Undergoing Antiretroviral Therapy in Subang City. KnE Life Sciences. Published online February 7, 2022;372-379. doi:10.18502/kls.v7i2.10331
29. French K. Kesehatan Seksual. Jakarta: Bumi Medika; 2020.
30. Herlinda F, Diniarti F, Darmawansyah. Faktor-Faktor Yang Berhubungan Dengan Kejadian HIV/AIDS Di Puskesmas Penurunan Kota Bengkulu Tahun 2022. Jurnal Vokasi Kesehatan (JUVOKES). 2023;2(1):13-22.
31. Atanuriba GA, Apiribu F, Boamah Mensah AB, et al. Caregivers' Experiences with Caring for a Child Living with HIV/AIDS: A Qualitative Study in Northern Ghana. Glob Pediatr Health. 2021;8:2333794X2110036. doi:10.1177/2333794X211003622
32. Atanuriba GA, Apiribu F, Laari TT, et al. How do caregivers of children living with HIV/AIDS cope, and where do they get support?: A qualitative study in Ghana. Lifestyle Medicine. 2023;4(2). doi:10.1002/lim2.79
33. Soliha, Masfi A. Hubungan Antara Mekanisme Koping Keluarga Dengan Penerimaan Diri (Self Acceptance) Keluarga Pasien HIV/AIDS di Wilayah Kerja Puskesmas Bangkalan. Jurnal Ilmiah Ilmu Keperawatan. 2020;11(2):1-10.
34. Cluver LD, Sherr L, Toska E, et al. From surviving to thriving: integrating mental health care into HIV, community, and family services for adolescents living with HIV. Lancet Child Adolesc Health. 2022;6(8):582-592. doi:10.1016/S2352-4642(22)00101-8
Authors
Sagala, D. L., Natalia, S., & Suangga, F. (2023). PENGALAMAN KELUARGA DALAM MERAWAT ANGGOTA KELUARGA (ORANG) DENGAN HIV/AIDS . JURNAL RISET KESEHATAN POLTEKKES DEPKES BANDUNG, 15(2), 493-506. https://doi.org/10.34011/juriskesbdg.v15i2.2424
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